Requirements for Successful Completion: Complete the learning activity in its entirety and complete the online CNE evaluation.
Speaker, Faculty, Planners and Authors Conflict of Interest Disclosure:
Planning disclosures: Barbara Monaghan discloses that she receives other financial/material support as owner of Cornerstone Medical Communications. Patricia Wasserman discloses that she receives other financial/material support as owner of Cornerstone Medical Communications.
Speaker disclosures: Ewa Elenberg discloses that she has received grant/research support from Raptor Therapeutics Inc., that she is a consultant/speaker’s bureau member for Raptor Pharmaceuticals, and that she is on the advisory board for Raptor Pharmaceuticals. Paul Grimm receives research/grant support as Stanford primary investigator in studies of cystinosis and Procysbi in patients. Dr. Grimm also discloses that he is a member of the advisory board to Raptor Pharmaceuticals. Ivette Jones discloses that she is is a member of the Raptor Pharmaceuticals Speaker's Bureau.
Planning Committee: • Annette Hood discloses that she is a member of the Amgen speakers’ bureau. • Denise Murcek discloses other financial/material support as an employee of the VA Medical Center. • Elizabeth St. John discloses other financial/material support as an employee of Fresenius Medical Care. • Kyra Trappett discloses other financial/material support as an employee of DaVita.
Commercial Support and Sponsorship: Supported by an educational grant from Raptor Pharmaceuticals
Accreditation Statement: American Nephrology Nurses’ Association is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.
ANNA is a provider approved by the California Board of Registered Nursing, provider number CEP 00910.
Objectives: • Delineate pathological features of cystinosis. • Identify infants and children at increased risk for the disease. • Recognize early signs and symptoms as well as clinical manifestations of complications in young adults.